HOPE Tameside
Hope fOr Paediatric Epilepsy
Our support group is run by parents and Carolyn Taylor, Paediatric Epilepsy Specialist Nurse at Tameside General Hospital.
Welcome
Support, friendship and fun
It's an informal meeting once a month for parents/carers of children and young people who have epilepsy.
It's your opportunity to build relationships, share and gain knowledge from others who may have had similar experiences to you.
It can help to build your confidence and provide mutual support through contact with other parents.
Our storyTo make a difference to our children's lives, who are living with epilepsy, in whatever way we can!
What is epilepsy?
Every child's epilepsy is unique
Epilepsy is the most common neurological condition defined as a tendency to have recurrent seizures (sometimes called "fits"). Seizures are caused by a sudden burst of excess electrical activity in the brain, causing a temporary disruption in the normal message passing between brain cells.
Our heroes
Families' stories
Children and families from HOPE share their journeys with epilepsy.
Chloe's story
In 2008 Chloe began having what we called "funny turns" which her GP and a consultant at the hospital were unable to explain.
Read more
Max's story
On the 26 September 2004, when Max was 9 months old, our lives were turned upside down as this was the day he had his first seizure.
Read moreWhat we do
Our achievements
Slide and Seek
Monthly sessions at Slide and Seek provide support and friendship for both the children, young carers and parents.
Teenagers' bowling
Monthly sessions at Hollywood Bowl – respite and fun for the teenagers with epilepsy, siblings and young carers.
Respite and days out
Short breaks and day trips to Gullivers World, Alton Towers, Chill Factore, Christmas parties and Mr Clown's.
Safer sleep
Anti-suffocation pillows given to any child who is a member of HOPE and who is at risk of SUDEP (sudden unexplained death in epilepsy).
Equipment for the hospital
A camcorder for Tameside Hospital to loan to parents to record night-time seizures, and an epilepsy training doll to show parents how to administer rescue medication.
Sensory and speech support
Sensory equipment for our sessions and to loan to families, and speech and language/communication sessions in the child's own home.
Regular sessions
Come and join us
Teenager's Tenpin Bowling
Hollywood Bowl, Ashton Moss Leisure Park, Fold Way, Ashton-under-Lyne, Manchester. OL7 0PG.Children's Slide & Seek
Slide & Seek, Unit A, SK14 Industrial Park, Broadway, Hyde. SK14 4QF.Why donate?
Help us make a difference
Funds donated to Hope are used to provide respite to families in the way of short breaks, trips and leisure activities as well as providing grants to families for specialist equipment they may need to care for a child with epilepsy.